drorar December 25, 2019

Hi everyone

In this post, I wanted to talk about books specifically books about autism.

So let’s go ahead and get started so one of the first books that I got that I read was actually a gift from my cousin she got her child is also on the spectrum her child is older than my son so I went to her and I asked her you know like if you got any advice I just recently diagnosis and she was kind enough to send me over a big book that she found very beneficial it’s healing and preventing autism, it’s the book by Jenny McCarthy and the doctor that she says helped her son a lot so this book I think is a little controversial because she kind of says that her son got sure that he doesn’t have autism anymore which if you ask me my opinion is you can’t cure autism and I don’t think it’s something that I mean it’s my opinion but autism doesn’t need to be cured I think the that you can definitely look into things that will help with behaviors help make your your child’s life easier better but I mean I’m not looking for it here you know what I want for my son specifically is for him to live a happy healthy life so if diets that claim to have cures or like stop behaviors I don’t believe that that’s the case reading books like this um they they talk a lot about what you can do to help what she did to cure her son which like I said I don’t think that’s the case I’m tops of all vaccines the tops of all vitamins it talks about on different medical procedures different like things that you can do expensive things um it’s a bunch of stuff you know it’s nice to read it talks about vaccines but I mean I don’t when I just got the diagnosis I would I wanted to up to absorb everything and anything so I tried meeting it I don’t even think I finished it it was beneficial um I thought it was beneficial in the beginning and it got me to try the gluten-free casein-free diet um I did try it for about a month and a half or so the thing about that it’s it’s it’s very very hard on especially when you have a picky eater my son is super picky he only eats certain foods he doesn’t like the color green you’re like I can’t put anything being in front of him he doesn’t like certain textures um a smell will make him not even try it some foods that I know he loves he will not even put in his mouth for whatever reason maybe I used two different seasoning or something I have to kind of force him to open his mouth and try it and once he tries if he likes it so changing his diet it has always been very hard getting him to try new foods has always been really hard but we did give it a go I remember it was right when he went got the diagnosis like I said when I first got the book and we did the the I bought a bunch of foods that I know he likes like it’s easy to get food without dairy nowadays and blue in without without gluten so we tried you know macaronis we tried pastas we tried making all the foods that I know he likes but without gluten and dairy so like pizzas when we would go out go out to eat as for gluten free and dairy free and he wouldn’t touch it for some reason no the smell or the taste or like something about it like if he would try and he would spit it out I guess like it was chewy or something I don’t really know so it was always a battle with him he just wouldn’t eat the foods and my son is very stubborn like if you tell me wait it out and he’ll eat it he wouldn’t you know and it would just cause more behaviors which I was okay with but within that time that I saw that we were trying it I didn’t see any changes to his his behaviors and I think I’m I’m forgetting to point out that one of the main reasons why I wanted to try it also is because he we did think he had stomach problems he would wake up in the middle of the night screaming but since he is nonverbal I didn’t know what was causing the pain and now I believe that it was the groin pains because he’s still on and off suffers with with pain but I feel like he’s communicating more to me that it’s in his legs and not his stomach back then we would think that it was in his stomach so we tried it specifically for that and it was and it wasn’t making a difference to be honest um once we kind of stopped with the gluten three we still continued with the dairy free because we are a family that enjoys almond milk regardless so we don’t even have milk in here cow’s milk we usually use almond milk so we continue with that we just in case because I did think he was some sort of tempt to like dairy we continue to try to avoid heavy creams like ice cream shakes yogurts we try to avoid that just in case it upset his stomach and anytime that we we would like incorporate some form of dairy like ice cream we did feel like he would get like wake up screaming for some reason I don’t know if he was or wasn’t we still don’t give him that much dairy like sometimes you know he’ll have like macaroni and things like that but straight up dairy he doesn’t like milk he doesn’t eat that often or yogurt doesn’t eat that often but I wouldn’t say that that is that hi buddy you want something good job bringing me the iPad come here what do you want one bagel okay so like I said we started that diet when he was first diagnosed so we’re jumping forward pretty much two years it’s been two years since he thought diagnosed and we do incorporate some a little bit of milk with when when a hat when it’s like cheese he still doesn’t drink milk on its own he has yogurt once in a while and and it doesn’t seem to affect them anymore like I like I thought there he did in the beginning it doesn’t seem to affect them gluten has never affected him now the whole point of this diet I believe us because they may say that it helps with behaviors now I didn’t see any changes in Christian the only way that I think you would see a change is if there is a sensitivity to a food and our kids the reason that they’re behaving a certain way or have a certain autistic behavior is for a reason so if your son isn’t son or daughter is in pain and it is because of a ear infection and that your infection is it’s making them hurt right so when you’re hurting and you can’t communicate it you’re gonna lash out you’re gonna not want to do this but you’re not gonna walk demands you’re just thinking about the pain so if you cure the pain you’re curing that behavior because he’s no longer in paint song he’s not lashing out being aggressive and this and that same thing with the dietary sensitivity if you’re taking away a certain thing that is causing gut issues you’re gonna take away some of the behaviors that were going on because of that pain so I think it’s okay to give it a go I mean I when I was when he was first diagnosed I wanted to try everything and I think that’s okay but it’s also okay to stop if you don’t see improvement or to stop if you don’t if it’s just not in the right and if it’s just not right for your family work because it is expensive it is you know a little bit of time consuming because you’re trying to get them to something that maybe they weren’t eating before I’m not saying it wouldn’t be beneficial so I’m maybe give it as oh you know that’s just our story right now we did try the diet when he was first diagnosed and it just and workout so there you go that’s the first book another book that I remember reading getting immediately was this sign language book which goes into another question that I hear often another question that I see often but perm subscribers is how did we get started with sign language and I remember just you know like researching online and looking into like how he can communicate and my my take on things has always been like if he doesn’t talk that’s okay but I need him to be able to communicate because guys that’s awful when there’s no way to try to get his words out his because there’s a little person in there you know he might not seem like he’s paying attention or or trying to interact or even communicate but he’s always trying to communicate whether is by tapping me pulling me trying to get my attention he’s always trying to communicate a need or you want so I wanted you to try to get something to make that easier you know so baby sign language basics was what I got and as you can see I have a bunch of little post-it notes because I wanted to keep track of the ones that I wanted to learn I remember being at work when because I worked when he first got diagnosed or right before and I would on my break or whenever there was a break in between whatever I was doing I would go through the book and put it a little note to what I wanted to practice and I would do like the little tests on myself so like what’s more okay and try to remember more what’s eat what’s all done what’s on ball you know so I would always quiz myself and then I would put my husband to try to get him and I would write the words on my little blackboard more bread more show me more more good job so we were pregnant we would practice sign language first on ourselves to try to remember it and then once we’ve got a few down we try to get one at a time so the first one I think we tried to do was more from what I remember the first one that I he got down also was more and it took a lot of practice always competing and so hand over head so he would never just go moron by himself we always if he wanted something or he wanted more of something we would go behind him like Hugo would get behind them grab his hands and do more oh good job more and after a long time he finally got it on his own and Mike not necessarily fighting himself but knowing that he needed to say more but with me saying do you want more and seeing if he would do it himself so that’s what I would recommend you know like you know grab a book study the the science first memorize them get them done by yourself and then do one at a time and then once your child has one sign down move on to the next and always continue rotating them because it’s easy for my son to lose the sign that he learned so always try to get him to practice on this the ones that he does know and it’s okay if he if he kind of like does it a lot like for things that he’s not supposed to do it like if he is requesting food and it’s doing more that’s okay just kind of like redirect them like if you already taught him to say eat to sign each and he’s signing more you could say yes you want more bread you want to eat more bread so just kind of like practice it it’ll it’ll become more of a of an easy flow and not as awkward once you could just continue doing it so this is a good book anything learn which book I would think is good or even online you can Google like each sign that you want to learn and they’ll show you pictures or even videos so it’s easy to get free information another book I have someone on my phone that I do through audio book one that I really enjoyed was mural tribes and I’ll try to put a picture if I can of the book I’m if not it’s mural tribes the legacy of autism so this one is very interested we’re interesting is pretty much the history of autism it talks about who discovered the diagnosis of autism it was two doctors and it was like autism and then there was Asperger’s and they thought they could they discovered two completely different diagnoses but they were pretty much the same thing but like as we all know autism is different it’s like a spectrum you know your kid may do this another kid may do that they all have similar traits but it nobody has ever pretty much the same so they both thought they had different notices that they discovered new conditions and it also talks about how how people from the past of course you know we think of autism as something that was recently discovered but the traits that we see now people can go back and look at their behaviors and characteristics of famous people from the past and say that person more than likely had autism you know so it’s very interesting to to I talk about Eisenstein and talk about former presidents and how they feel that they had these characteristics it’s super interesting and it also talks about how poorly people were treated about how they were taken to psychiatric wards how they were killed how Nazis would would deal with persons with disabilities it’s super interesting and it also talks about now the the the current diagnosis of people here how we treat people how it’s like just everything so it’s it’s just a history and it goes over all things autism so it’s super fascinating books that I find greenly um it makes me emotional and it opens my eyes and it makes me want to like change the way that I am are are things that are written by people on the spectrum so a really good book is so the reason I jump it’s a book written by thirteen-year-old boy and he pretty much is answering questions that people are asking him I want to know about what they feel and I know that every kid is different but it really answers a lot of questions that I have and I really want answers to so maybe all of this doesn’t pertain to my son but I love just getting a peek inside of their brain so this is definitely a must and it’s an easy read you know I can read this one I don’t have to listen to it because it’s not explaining something something scientific to me it’s just letting me see into his brain so I really really like this one and these two are actually two that I got pretty much when I got the sign language book and I just couldn’t get into them like I said it’s not easy for me to like really really focus and pay attention and process what is being said for some reason it’s very scientific or like very you know like I’m teaching you something I prefer to listen to it so I actually got these four I got these through the audiobook app so I’m gonna definitely look into these this one the sensory child gets organized sounds interesting and ten things every child oh you know what I like I did read this one through the audiobook book it is very interesting she pretty much is a mom of a child that is now grown up going to college and she explains everything that she did everything that she went through and how she helped her son so it’s a nice looking to another parent’s mind I really enjoyed this one another one that I found really really amazing Carly’s voice I think we’ve all heard about Carly Fleischman I think I’m probably saying that wrong you know she she really her story was interesting um the book is about the dad pretty much talking about the family dynamic their life story going in depth about like you know like ABA therapy how they saw their daughter was or like wasn’t and like you know it’s easy like I’ve said for people to look into our look at our children from a distance and see a disability and see you like he doesn’t talk she doesn’t talk she’s acting crazy she’s disabled you know all these things it’s easy for them to pass judgment and think it’s an empty shell you know and as much as it sucks so that is a thought that people have unfortunately you’re like it’s a waste put them in I kind of had comments random comments you know don’t take to heart like you know if you don’t want to get bullied these kids need to be put away they don’t they don’t have a place here they’re just wasting space put them where they need to be and their misery like awful comments you know like so I know that people pass judgment without knowing you know our children so I loved seeing how this dad this whole family assumed that their their child please yeah that’s wrong so they thought that she did she you know she maybe wasn’t understanding you know they probably also were pretty much not understanding that she had so much more to offer you know so she finally got a way to communicate she finally was able to explain to them I’m right here you know like I understand so much more than you guys even know one of the paths of the chapters was like when she finally discovered that she could communicate via typing you know how she wrote down in pain and it was the first time that she ever expressed something by herself and like pretty much spoke to them so the whole book was amazing and then in the end there’s like a Q&A and they asked her a lot of questions and she’s brilliant and she looks us into her mind again kind of like the the reason I jump book I love all books that let me look into somebody’s on way of being and reasoning and why they do this and that and she is smart like she’ll let you know like if you ask your hey why does my son have to block out noise you know I can show response something like it’s not him walking out noise it’s him cancelling out the noise that is preventing him from finishing the puzzle so she explains so many things and I don’t want to like explain the whole books to you guys these are just it’s a good book and it’s a book that you should either listen to or read because it’s very very interesting so these are the books that I have read so far and I want to read so many more I think it’s crucial that we do our research and not just research but just like pay attention and listen to people on the spectrum they have a lot to say they want to they want to be understood and they want to give you tools to understand them so I want to absorb as much information as I can welcome boba I’ll give you something right now so I just wanted to make a quick video just talking to you guys about books and I hope you guys have read some of these let me know what you guys have read or what you guys are interested in reading and I would love to hear from you guys yeah I just thought this would be an interesting book so I’m gonna go feed my son nouns Pali super high we just finished APA and I will talk to you guys super soon say bye say bye wait good job bye guys

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